Interstitial Cystitis(IC)/Bladder Pain Syndrome
Interstitial Cystitis(IC)/Bladder Pain Syndrome
What is Interstitial Cystitis(IC)/Bladder Pain Syndrome?
Interstitial cystitis (IC)/bladder pain syndrome (BPS) is a chronic bladder health issue. It is a feeling of pain and pressure in the bladder area. Along with this pain are lower urinary tract symptoms which have lasted for more than 6 weeks, without having an infection or other clear causes.
Symptoms range from mild to severe. For some patients the symptoms may come and go, and for others they don't go away. IC/BPS is not an infection, but it may feel like a bladder infection. Women with IC/BPS may feel pain when having sex. The more severe cases of IC/BPS can affect your life and your loved ones. Some people with IC/BPS have other health issues such as irritable bowel syndrome, fibromyalgia, and other pain syndromes. The bladder and kidneys are part of the urinary system, the organs in our bodies that make, store, and pass urine. You have 2 kidneys that make urine. Then urine is stored in the bladder. The muscles in the lower part of your abdomen hold your bladder in place.
What causes Interstitial Cystitis(IC)/Bladder Pain Syndrome?
Some doctors think BPS may be caused by abnormal changes in the lining of the bladder. But the cause isn't clear.
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What are the symptoms of Interstitial Cystitis(IC)/Bladder Pain Syndrome?
Pain from BPS can get worse the longer you wait before urinating. It's common to have more pain as the bladder fills and some relief after you urinate. Other symptoms include urinating often, feeling a constant urge to urinate, having pain during or after sex, and having pain in your belly or pelvis.
How is Interstitial Cystitis(IC)/Bladder Pain Syndrome diagnosed?
To diagnose bladder pain syndrome (BPS), your doctor may do a test called cystoscopy that uses a thin, lighted tube to see the inside of your bladder. You may also get a urine test to rule out other problems, such as a urinary tract infection.
How is Interstitial Cystitis(IC)/Bladder Pain Syndrome treated?
Treatment may include:
- Bladder training.
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To help your bladder get used to comfortably holding more urine, you can slowly increase the time between when you urinate during the day (not while sleeping).
- If you find you are urinating every 30 minutes, for example, you can set a schedule of going every 45 minutes during the day.
- If that works for a week, you may be able to increase your time to every 60 minutes.
- Slowly work your way up to 2½ hours.
- Physical therapy.
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A physical therapist can teach you exercises to relax the muscles in your lower belly, groin, and buttocks. You may want to look for a physical therapist who is specially trained in pelvic floor therapy.
- Medicines.
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- Medicines taken by mouth (oral medicines) include amitriptyline, pentosan polysulfate, antihistamines, and anti-inflammatory medicines.
- Medicines that are put into the bladder (bladder instillations) are often combined with other medicines. These include medicines such as dimethyl sulfoxide (DMSO), lidocaine, heparin, and sodium bicarbonate.
- Counseling.
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A professional counselor can help you cope with pain, stress, and depression. It may also help to join a support group for people with BPS or chronic pain.
- Other treatments.
These include botulinum toxin injections in the bladder and acupuncture. These have been helpful for some people.
- Surgery.
If no other treatments help, surgery may be needed. It might be done to stop nerve pain or help with a problem like bladder distension. As a last resort, surgery may be done to remove the bladder.
Your doctor may have you use a bladder diary to record how often you urinate and about how much urine is released.
How can you care for yourself when you have Interstitial Cystitis(IC)/Bladder Pain Syndrome?
There are things you can do to care for yourself. For example, avoid any food or drink that makes your pain worse. Try bladder training. See if using heat or cold helps to relieve pain. Take your medicines as prescribed. Don't smoke. And consider joining a support group for people who have BPS.
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