Resources for Congenital Heart Patients
Resources for Congenital Heart Patients
Regardless of what procedure your child is coming to the Congenital Heart Center for, it is useful to know about the support and tools available. This guide will help you understand what is needed to prepare your child emotionally, socially and medically.
Preparing for Surgery
Guidebooks
Single Ventricle Congenital Heart Defects Guidebook
Support and education for patients, parents and families about single ventricle congenital heart defects.
Valuable information, special resources and practical tools to help guide and support you throughout your child’s journey. This book is intended to be brought with you to each clinic visit, procedure, or admission and continued to be referenced at home.
More Information
Transition Program Webinars
News & Stories
Health Lab
Research may help better predict outcomes in kids with congenital cytomegalovirus
Two new studies may help researchers and clinicians better understand congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and a leading cause of non-genetic hearing loss in children.
Health Lab
From simulation to practice for doctors
A doctor discusses how simulation practice is helping to sharpen skills of pediatric anesthesia specialists.
Health Lab
Rare infant triplet overcomes one-in-a-million type of liver cancer
Josephine “JoJo” Wells, a spontaneous triplet, was diagnosed with rare hepatoblastoma at nine months old and treated with surgery and chemotherapy.
Health Lab
A complex fetal surgery to help a baby’s lungs grow
Doctors perform a rare in utero procedure aimed at improving outcomes for a 29-week fetus diagnosed with severe congenital diaphragmatic hernia
Health Lab
Few parents offer teens guidance on healthy eating during the holiday season
One in three parents say it’s difficult to talk with their teen about food and weight, rising to more than half among parents who believe their teen is overweight, suggests national poll.
Health Lab
Child survivors of critical illness are missing out on timely follow up care
Critically ill or injured kids may be missing out on vital follow up care, finds a study from Michigan Medicine.
