Resources for Congenital Heart Patients

Resources for Congenital Heart Patients

  • Overview
  • Guidebooks
  • Transition Program

    • Regardless of what procedure your child is coming to the Congenital Heart Center for, it is useful to know about the support and tools available. This guide will help you understand what is needed to prepare your child emotionally, socially and medically.

    Guidebooks

    • Single Ventricle Congenital Heart Defects Guidebook

      Support and education for patients, parents and families about single ventricle congenital heart defects.

    • Your Heart Guidebook

      Valuable information, special resources and practical tools to help guide and support you throughout your child’s journey. This book is intended to be brought with you to each clinic visit, procedure, or admission and continued to be referenced at home.

    News & Stories
    Portrait of Dr. Rosen smiling and seated at a table.
    Philanthropy News

    Continuing the legacy of a doctor’s doctor

    As he faced a serious cancer diagnosis, David Rosen, M.D, made a gift to the U-M Division of Adolescent Medicine that will continue his legacy for decades to come.
         Cole, wearing sunglasses and a purple Calming the Storm t-shirt with a rainbow, is seated on a blanket outdoors and holding a Mott teddy bear.
    Philanthropy News

    A pediatric epilepsy fundraiser that changes lives

    Your support of Calming the Storm advances pediatric epilepsy research and patient care programs. There are many ways you can contribute to make a difference for so many children and families.
         Headshot of Abel, a smiling toddler wearing a headband with two gold pompoms.
    Philanthropy News

    Block Out Cancer: From a crisis abroad to answers at Mott

    Your gift to Block Out Cancer helps children like Abel overcome childhood cancer. Donations fill critical gaps for lifesaving pediatric cancer research and care at C.S. Mott Children's Hospital.
         baby with hearing aid on ear looking from side view with blue pacifier in mouth
    Health Lab

    Research may help better predict outcomes in kids with congenital cytomegalovirus

    Two new studies may help researchers and clinicians better understand congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and a leading cause of non-genetic hearing loss in children.
         doctor in scrubs with doll baby doing spinal tap in back in conference room on table
    Health Lab

    From simulation to practice for doctors

    A doctor discusses how simulation practice is helping to sharpen skills of pediatric anesthesia specialists.
         Triplet babies in a hospital crib
    Health Lab

    Rare infant triplet overcomes one-in-a-million type of liver cancer

    Josephine “JoJo” Wells, a spontaneous triplet, was diagnosed with rare hepatoblastoma at nine months old and treated with surgery and chemotherapy.