Cystic Fibrosis Program (Pediatric)
Cystic Fibrosis Program (Pediatric)
The University of Michigan Health Cystic Fibrosis Center is the largest CF program in Michigan, with approximately 270 children patients.
For information on adult cystic fibrosis care, visit the Adult Cystic Fibrosis Program page.
Our Approach
The U-M Health CF Center was a recipient of the 2008-2009 Cystic Fibrosis Foundation’s Quality Care Award recognizing outstanding QI processes and accomplishments. Also, the Pediatric CF Center was the recipient of 2013-2014 CF Foundation’s Quality Care Award. Our center was among 8 centers (out of 30) selected to receive the award. The clinic was awarded based on its achievement of the following performance standards:
- The center actively uses clinical outcomes data to identify opportunities for improvement and documents results of improvement efforts.
- The center aligns improvement efforts to result in measurable improvement in important clinical outcomes (process improvement tied to clinical outcomes with key drivers).
- The center consistently and actively involves patients and families in identifying, designing, and / or implementing improvement efforts.
- The center employs innovative strategies to improve care processes and outcomes and implements system changes that result in high reliability of care processes.
Services
The cystic fibrosis program offers several unique features as part of its care center model, including:
- Coordination of Newborn Screening for CF in the State of Michigan
- Multidisciplinary care with social work, nursing, respiratory care, physical therapy, psychology, pharmacy, and dieticians
- Active Parent Advisory Board
- Annual Family Night Conferences and Newsletters
- Transition programs from Pediatric to Adult care teams
Lung function, also known as FEV1, is a key outcome for patients with cystic fibrosis. The Cystic Fibrosis Center has seen consistent improvement in lung function performance since initiating a major focus on quality improvement. Visit the CF Foundation's Care Center Data page to view cystic fibrosis outcomes from centers around the U.S.
Appointment Information
To schedule an appointment to discuss cystic fibrosis care, call us at 734-764-4123.
Locations
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Pediatric Pulmonary Clinic | C. S. Mott Children's Hospital 1540 E Hospital Dr
Floor 6 Reception C
Ann Arbor, MI 48109-4234Get Directions
Doctors
Lindsay Jane Leininger Caverly, MD
Clinical Associate Professor
Pediatric Pulmonology, Pediatrics
Amy Goldstein Filbrun, MD
Clinical Associate Professor
Pediatric Pulmonology, Pediatrics
Fauziya Hassan, MBBS, MS
Clinical Professor
Pediatric Pulmonology, Sleep Medicine, Pediatrics
Marc Barry Hershenson, MD
Professor
Pediatric Pulmonology, Pediatric Critical Care Medicine, Pediatrics
Toby Crowe Lewis, MD
Associate Professor
Pediatric Pulmonology, Pediatrics
Carey Nien-Kai Lumeng, MD, PhD
Professor
Pediatric Pulmonology, Pediatrics
Samya Z Nasr, MB BCH
Professor
Pediatric Pulmonology, Pediatrics
Antonia Petrova Popova, MD
Associate Professor
Pediatric Pulmonology, Pediatrics
Ixsy Abigail Ramirez, MD, MPH
Clinical Assistant Professor
Pediatric Pulmonology, Pediatrics
THOMAS George Saba, MD
Clinical Associate Professor
Pediatric Pulmonology, Pediatrics
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