ALS Programs and Clinics at Michigan Medicine

At Michigan Medicine we strive to provide exceptional care and advance education, advocacy and original scientific discovery for persons with ALS and their families. Our ALS-focused programs and clinics include our ALS Center of Excellence, the Pranger ALS Clinic, and the Neuronetwork for Emerging Therapies.

ALS Center of Excellence

ALS Center of Excellence

Directed by Eva L. Feldman, the ALS Center of Excellence as designated by the ALS Association has two prongs — patient care and scientific research — that work together to improve the understanding and treatment of Amyotrophic Lateral Sclerosis (ALS). A world leader in the fight against ALS, our ALS Center of Excellence features a combination of renowned researchers, unrivaled facilities, and a fully equipped and dedicated clinic team.

Our researchers are working across disciplines to understand the causes of ALS, to develop faster diagnoses that improve patient care, and to create novel therapies that bring hope to persons with ALS and their families.

Eva L. Feldman, MD, PhD

Eva L. Feldman

Dr. Eva Feldman, Director of the ALS Center of Excellence, is the Russell N. DeJong Professor of Neurology at Michigan Medicine.

A renowned neurologist and neuroscientist, she has devoted her career to understanding neurological disorders and developing new treatments.

Dr. Feldman earned her medical and doctoral degrees at U-M and completed her neurology residency at Johns Hopkins Hospital. She joined the U-M faculty in 1988.

More Information About Dr. Feldman

Stephen A. Goutman, MD 

Stephen A. Goutman

Dr. Stephen Goutman, Associate Director of the ALS Center of Excellence, is an Associate Professor of Neurology at Michigan Medicine.

Dr. Goutman’s area of expertise is ALS/Lou Gehrig’s Disease where his focus is delivering comprehensive and compassionate care.

His research is focused on identifying the causes of ALS and leveraging that knowledge to develop new treatments.

More Information About Dr. Goutman 

Pranger ALS Clinic

The Pranger ALS Clinic provides exceptional care for ALS patients and their families and has been an ALS Association Certified Treatment Center of Excellence for more than 25 years. Our dedicated team members excel in lengthening and improving quality of life, managing ALS symptoms, maximizing independence, and providing counseling and other services to ALS patients.

Learn more about the Pranger ALS Clinic.

Neuronetwork For Emerging Therapies

The NeuroNetwork for Emerging Therapies (NeuroNet) at Michigan Medicine is an exciting evolution for the Program for Neurology Research and Discovery. We are unwavering in our work to accelerate scientific discovery to alleviate suffering in neurological diseases.

Our work in recent years highlights that we will not reach this goal alone. Every day, we work with a passionate, innovative, diverse, multidisciplinary team of researchers and physician-scientists at the forefront of biomedical research. 

Learn more about The NeuroNetwork for Emerging Therapies (NeuroNet) at Michigan Medicine.

National Advisory Board

ALSBoard

First row: Hilary King, Sheri Mark, Christina Clark, John Scarbrough. Second Row: Jon Gerych, Doris Fortier Allen. Third Row: Lisa Rosenberg, Harold Burrell Jr., Willard Holt III, Scott Pranger. Not pictured: Dr. Bill Allen, David Forbes, Lauren Hendel, Jim Hiller, Dr. Cliff Lampe, Dr. Brian Roth, Ari Weinzweig.

Leadership Advisory Group

Sheri Mark, Board President

 

SheriMark

Sheri Mark is a registered nurse, attorney and writer dedicated to the metro Detroit community. From 2011-2013, she was president of the board of directors for North Star Reach Camp, a non-profit organization providing ill children with camp experiences in Pinckney, Michigan. Previously, Mark served as president of the board of directors for Michigan Citizens for Stem Cell Research and Cures, an organization that educates Michigan citizens about stem cell research.

Mark’s first cousin died of ALS in 2003 at the age of 50 after suffering with ALS for seven years. A year later, Mark’s step-father died of ALS after suffering with ALS for one year. She acquired her Bachelor of Science in Nursing from the University of Detroit Mercy, and her Doctor of Law from Wayne State University. She and her husband, Dr. Abe Slaim, reside in Bloomfield Village, Michigan.

Hilary King

 

HilaryKing

Committee Chair - Catalyst, Strategies and Development

Hilary King is the current president of Temple Israel, the largest reform Jewish congregation in North America. She has held a leadership role at Temple Israel for more than twelve years. In her capacity as president, Hilary is responsible for overseeing the executive committee and operations, fundraising initiatives and strategic planning. In addition, Hilary served as a past board member of the Anti-Defamation League and spearheaded two major fundraisers for Michigan Medicine.

Previously, she organized A Match for Life, a bone marrow drive resulting in more than 15,000 people signing up for the national marrow registry. Before devoting her time to community service, Hilary worked in the broadcast and media industry. She and her husband, Edan, reside in Bloomfield Hills, Michigan, and have three sons.

Harold Burrell Jr.

 

HaroldBurrellJr.

Committee Chair - West Michigan Geographic Leadership and Strategies.

Harold Burrell, Jr., is partner, senior vice president and account executive of Lighthouse Insurance Group (LIG) in Grand Rapids, Michigan. With more than 30 years of experience in the insurance industry, he served on the board of directors for LIG from 2001-2018.

Currently, he serves as an executive board member for the ALS Association – Michigan Chapter. He is also active on the board of directors for Goodwill Industries of West Michigan and the advisory board for the West Michigan Sports Commission. Additionally, he is appointed to the agent advisory board for Donegal Michigan Insurance Company and the advisory board for Horizon Bank. Burrell earned his bachelor’s degree in business administration and management from the University of South Carolina.

John Scarbrough

 

JohnScarbrough

Committee Chair - Media, Technology and Innovation

John Scarbrough, a lifelong resident of the Ann Arbor area, is a retired global automotive supplier executive with many years of management experience in sales, engineering, and manufacturing. He holds a Bachelor of Science in manufacturing technology from Eastern Michigan University.

Scarbrough is family-oriented, with children and grandchildren in the area, and has personal experience with ALS, as his wife was diagnosed with ALS in early 2014 at the University of Michigan Multidisciplinary ALS Clinic. Honoring her 2016 passing, John has organized successful individual walking events to raise funds for the ALS Association.

Doris Fortier Allen

 

DorisAllen

Board Member

Doris Fortier Allen is a respiratory therapist at the Henry Ford Health System’s Harry J. Hoenselaar ALS Clinic. She has more than three decades of experience in respiratory care and ventilatory support. Allen’s prior experiences include serving on the board of directors of the ALS Association – Michigan Chapter, management of St. John Providence Park Hospital Cardiopulmonary Services and the Sleep Disorders Center, and as a regional clinical specialist for ResMed, an international medical device company specializing in non-invasive ventilatory support systems.

She is a Madonna University graduate with a Bachelor of Science in allied health administration and additional training in respiratory therapy. She and her husband, Dr. William T. Allen, reside in Gregory, Michigan.

Dr. William T. Allen

Board Member

Dr. William T. Allen is a retired pulmonary and critical care physician. Beyond medical staff leadership positions, he has hospital executive management experience at St. Joseph Mercy Hospitals in Pontiac and Ann Arbor, and has served on hospital boards. He served on the clinical faculty of the University of Michigan (U-M) Medical School and was an adjunct associate professor of executive education at U-M’s Ross School of Business. With undergraduate and medical degrees from Michigan State University, Dr. Allen was a fellow in pulmonary and critical care medicine at the U-M Medical Center.

He also received a Master of Health Services Administration from the U-M School of Public Health. Most recently, he worked as a healthcare consultant, developing and implementing clinically integrated networks nationwide. Dr. Allen and his wife, Doris, reside in Gregory, Michigan.

 

Christina Clark

 

ChristinaClark

Board Member

Christina Clark lost her son, Peter, to ALS in 2003 after an eight-year battle with the disease. She is a former trustee of the ALS Association and was a member of the National Institutes of Health Director’s Council of Public Representatives from 2005-2009.

Clark is the founder and president of the Foundation for Interdisciplinary Motor Neuron Medicine, focusing on innovative therapeutic research for ALS and adaptive clinical trial designs. Clark holds degrees from Cornell, Harvard, and Michigan State Universities. She resides with her husband, Emory, on their farm in Metamora, Michigan.

 

David Forbes

 

David-Forbes

Board Member

David Forbes is a partner of The Forbes Company, a nationally recognized developer, as well as owner and manager of luxury shopping destinations throughout Michigan and Florida. He is responsible for all aspects of leasing for these landmark retail properties. A University of Miami alumnus, he is on the board of the University of Michigan’s (U-M) Parent Council, the Cranbrook Schools Board of Directors in Bloomfield Hills, Michigan, and is a member of the International Council of Shopping Centers.

The Forbes name is connected to U-M through academics, athletics and the recently announced Forbes Institute for Cancer Discovery. While two of Forbes’ children are U-M graduates, he also has two 17-year-old boys and a 6-month-old girl. Forbes’ close friend and colleague, Derek Wood, was diagnosed with ALS in 2016, which prompted his collaboration with the ALS Center of Excellence.

 

Jon Gerych

 

JonGerych

Board Member

Jon Gerych is the owner and CEO of Gerych’s Special Events and Floral Design in Fenton and Birmingham. Since taking on the business from his father in 1975, he has planned thousands of high-end weddings and celebrations throughout metro Detroit. In 2016, Gerych’s Flowers was voted Readers’ Choice Best Florist in Detroit Metro Times.

Jon’s wife of 30 years, Jo-Ann, passed away due to ALS in 2018. A native of Fenton, Jon has four children -Tom, Amanda, Alexis, Kelly – and eight grandchildren.

 

Lauren Hendel

 

Lauren-Hendel

Board Member

Lauren Hendel accepted a position with Spotify in New York following the 2019 completion of her Bachelor of Business Administration degree from the University of Michigan’s (U-M) Ross School of Business.

Upon her father’s development of ALS in 2016, she founded A Lot Stronger (ALS) Together, the first student-run organization at U-M dedicated to supporting ALS research. 

The club has teamed up with Michigan Medicine’s Office of Development to generate awareness and create fundraising events to benefit local ALS research and U-M’s Multidisciplinary ALS Clinic. Hendel, originally from Scarsdale, New York, launched a website to raise awareness and funds for the clinic by selling customized apparel.

 

Jim Hiller

 

HillerJim

Board Member

Jim Hiller is a licensed attorney and has been a member of the State and Federal Bar Association since 1973. He is the former president and CEO of Hiller’s Markets. He was the recipient of Michigan’s Top Executive Award from Corp Magazine and the Focus Detroit Award for outstanding contributions to the Detroit region.

As a philanthropist, Hiller formed and endowed the University of Michigan Program for Neurology Research & Discovery (PFUND/PNRD), which is led by Dr. Eva Feldman, and the Hiller ALS Center at Wayne State University.

Hiller has held a variety of positions in the Detroit area medical community. He serves on the University of Michigan Health System Advisory Board, was a former member of the ALS of Michigan Board of Directors and the Beaumont Hospital Board of Trustees.

A native of Detroit, Hiller graduated from the University of Detroit Law School, where he received the Outstanding Student Award, and was awarded the University of Detroit Mercy School of Law Dean John P. Scallon Award. Jim and his wife, Marge, have three sons – Justin, Andrew and Spencer.

 

Willard Holt III

 

WillardHoltIII

Board Member

Willard Holt III is an of counsel attorney at Plunkett Cooney in Bloomfield Hills, Michigan. Since joining the firm in 2005, Holt focuses on business law and estate planning.

He is also a member of Plunkett Cooney’s Business Advisory Group and is a leading practitioner in the legal formation, structure, and operation of Minority Business Enterprises and Women-Owned Business Enterprises.

Previously, Holt was CEO of Phoenix Medical Financial Services, Inc., and partner at Raymond & Prokop, P.C. Currently, he is engaged with The Midnight Golf Program, which helps under-served young people transition from high school to college and into a professional career.

A graduate of Detroit Country Day School, Holt holds a bachelor’s degree from Wesleyan University, as well as Doctor of Law and Master of Laws-Taxation from Georgetown University Law Center.

 

Dr. Cliff Lampe

 

Lampe_Cliff

Dr. Cliff Lampe is a professor in the University of Michigan School of Information. He is interested in how groups use social media and online communities to accomplish their goals. He studies how groups can engage in a variety of collective action activities using information and communication technologies.

Most recently, he has studied the design, uses, and effects of use of such sites as Facebook and Wikipedia. One of Dr. Lampe’s core values is combining top quality research with community engagement.

Previously, he spent six years as an assistant professor in the College of Communication Arts and Sciences at Michigan State University. Dr. holds degrees from Kalamazoo College (B.A.) and the University of Michigan (Ph.D.).

 

Scott Pranger

 

Pranger

Board Member

Scott Pranger is the principal manager for the Pranger Family Foundation, founded in 2012 to get involved with education, community affairs and religious causes.

From 2004-2012, Pranger was the CEO and owner of EQI, LTD., which sources metal castings, forgings, and fabrications from suppliers around the globe to customers in 13 countries. Prior to EQI, Pranger served as vice president of Kurdziel Industries, Inc., for 20 years.

In 2015, Pranger lost his wife, Cathleen, to ALS after a nearly 15-year battle. In her honor, he has been a strong supporter of the ALS Association. He is a 20-year board member of Junior Achievement of the Michigan Great Lakes and supports numerous Christian organizations around the world.

Pranger resides in Spring Lake, Michigan, and has one son attending college and a daughter living in Florida with three grandchildren.

 

Lisa Rosenberg

 

LisaRosenberg

Board Member

Lisa Rosenberg is the founder and owner of Closet NV, a high-end designer consignment boutique in West Bloomfield. Lisa is a graduate of the University of Michigan and earned her law degree from the University of Detroit School of Law.

She has previously served on the ALS Association of Michigan’s Board of Directors, a role she pursued after her father, Sanford Roth, was diagnosed with ALS when he was 66 years old.

Lisa has spearheaded numerous fundraisers for Dr. Eva Feldman and U-M. She and her husband, Mark, have been married for 30 years and have two daughters.

 

Dr. Brian Roth

 

RothBrian

Board Member

Since 1995, Dr. Brian Roth has been the medical director of Ascension Providence Rochester Hospital (formerly Crittenton Hospital), a 24-bed inpatient rehabilitation center. He is also the president of Specialists in Rehabilitation Medicine, P.C.

Dr. Roth’s focus is on the outpatient care of the musculoskeletal and central nervous systems, as well as the inpatient care of people with life altering conditions, such as strokes and spinal cord injuries. In 2012, Crittenton Hospital chose him as its “Physician of the Year.” On numerous occasions, Dr. Roth has been named “Top Doc” by Hour Magazine and “Medical Director of the Year” by RehabCare.

He is also an assistant professor in physical medicine and rehabilitation (PM&R) at Wayne State University (WSU) School of Medicine. A native of Detroit, Dr. Roth graduated from Michigan State University and received his medical degree at WSU.

Dr. Roth completed a four-year PM&R Residency at Sinai Hospital in Detroit, serving as chief resident in his final year. Dr. Roth and his wife have two children and reside in Birmingham, Michigan.

Make an Appointment

To request an appointment or to get more information, please call 734-936-9006 and a team member will get back to you within two business days.