While there is no cure for cystic fibrosis, with the disease generally getting worse over time, people with cystic fibrosis can live into their 40s and longer, thanks to screening and new treatments. On this basis, we created an adult cystic fibrosis program at the University of Michigan’s Cystic Fibrosis Center to support patients over 21 years of age. Read more about adult-onset cystic fibrosis.
Accredited by the Cystic Fibrosis Foundation, we have the largest program of its kind in the state of Michigan, offering a multidisciplinary approach for complete CF care, along with an active research program with access to cutting-edge treatments as they become available. Our long-established program has also received Quality Improvement Awards from the Cystic Fibrosis Foundation for sustaining quality improvement work that led to better health outcomes for people with cystic fibrosis.
About Transitioning from the Pediatric to the Adult CF Program
When it is time to move from the pediatric cystic fibrosis program to the adult program, a transition appointment will occur at one of your regular appointments in the Pediatric Cystic Fibrosis Clinic. At this appointment, your pediatric cystic fibrosis doctor will introduce you to the physician who will be assuming your adult care. Because good communication is important to a smooth transition, your new physician will spend time getting to know you and your family, answering questions, and explaining the adult care program during this initial meeting.
Your next appointment will be scheduled in the adult clinic with your adult cystic fibrosis physician. All of your medical records from the pediatric program will immediately be available to your new physician so no information will be lost during the transition.
Clinic Location, Hours and Patient Information
The Adult Cystic Fibrosis Clinic at the University of Michigan is located in Reception Area C on the 3rd floor of the Taubman Center, two floors above the Pediatric Cystic Fibrosis Clinic. The adult clinic meets regularly on Thursday afternoons, but you may be seen at other times when needed. The Pulmonary Function Laboratory is located in the Cystic Fibrosis Clinic area, blood drawing is just across the hall, and outpatient radiology is on the 2nd level of the Taubman Center, Reception Area A. The phone number for the adult clinic is 888-287-1085.
Outpatient Appointment Information
We recommend that you visit the Cystic Fibrosis Clinic every 3 months, or more frequently if needed.
- You will meet with one of our dieticians, social workers, and physical therapists at least once a year, and more often when needed. The dietician and social worker will see you during one of your regular appointments. The physical therapy appointment will be scheduled separately, but will occur immediately before your appointment.
- We also recommend that at least once per year you have blood tests and a chest x-ray to identify potential problems before they cause you symptoms.
- We will review the list of medications you are taking and ask if you need any refills at each clinic visit. Whenever appropriate, we try to use medications that are covered by your insurance company in order to reduce out-of-pocket expenses. We will also get prior authorizations from your insurance company if necessary.
- At the conclusion of each visit, your next appointment is scheduled. If you need to reschedule an appointment, call 888-287-1084.
- If you are sick and feel you might need to be admitted for inpatient therapy, please call the nurse in the Pulmonary Clinic at 888-287-1085. Go to the emergency room if it is a weekend or after hours.
- Adult patients are admitted to ward 6C in University Hospital. Ward 6C is a 32-bed, inpatient unit that has special expertise in pulmonary-related problems and cystic fibrosis.
- Our team will ensure coordinated, comprehensive care, from secretion clearance to nutrition services.
The Importance of Infection Control
To limit the spread of germs in the outpatient clinic, we avoid having two patients with cystic fibrosis use the same exam room on a single afternoon. Each night, the rooms undergo additional cleaning before the next day. We have waterless alcohol-based hand sanitizers placed in the exam rooms in the clinic. These measures have been quite effective in preventing the spread of germs at our Cystic Fibrosis Center. For more about the measures we take to prevent the spread of germs, you can speak with any member of our team. Learn more about the Adult Cystic Fibrosis Clinic's team of professionals.
Make an Appointment
To schedule an appointment to discuss adult cystic fibrosis, call us at 734-647-9342.