U-M named recipient of $650,000 PCORI Pilot Project to develop patient-centered tool for nephrotic syndrome management

Project part of national effort to improve methods for patient-centered outcomes research

Photo Date: July 31, 2012
Debbie S. Gipson

ANN ARBOR, Mich. —PCORI is an independent, non-profit organization whose establishment was authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed health care decisions.

“The Pilot Projects will improve our understanding of how to conduct research and disseminate research findings in ways that are more responsive to the needs of patients and the health care community,” said PCORI Executive Director Joe Selby, M.D., M.P.H. “We are excited to be funding 50 projects nationwide, led by creative and innovative researchers. Their work will help us establish a foundation for patient-centered outcomes research that will give patients, caregivers and clinicians the tools they need every day.”

PCORI is committing $30 million in funding over two years for the pilot projects, which were selected by PCORI ‘s Board of Governors through a competitive, multi-stage review process. Proposals were evaluated for their scientific merit and rigor and fit within eight areas of interest outlined in the pilot projects announcement.

Awards, approved for research institutions in 24 states and the District of Columbia, include those for projects designed to develop a range of tools and techniques aimed at improving patient-centered care and decision-making; create new patient-centered care measures; and improve delivery of patient-centered counseling and care in various health care settings.

“This study will build upon the collective wisdom of patients, patient advocates, healthcare providers, health communications experts, and researchers” Dr. Gipson said yesterday. “Our overall goal is to integrate the patient perspective in treatment strategies for health conditions such as nephrotic syndrome.”

For more information about the PCORI Pilot Projects, visit www.pcori.org.

Patients interested in learning more about nephrotic syndrome care at the U-M Health System should visithttp://www.med.umich.edu/pediatrics/division/nephro/index.htm

Written by Emily Herreshoff

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