Spina Bifida

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Spina Bifida is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Spina bifida is characterized by incomplete closure of certain bones of the spinal column (vertebrae), leaving a portion of the spinal cord exposed. Part of the contents of the spinal canal may protrude through this opening. In the most severe form, rachischisis, the opening is extensive. Spina bifida may cause difficulties with bladder control, walking and/or other functions, depending on the severity of associated symptoms.

Supporting Organizations

Birth Defect Research for Children, Inc.

976 Lake Baldwin Lane
Orlando, FL 32814
USA
Tel: (407)895-0802
Email: staff@birthdefects.org
Website: http://www.birthdefects.org

Chiari & Syringomyelia Foundation

29 Crest Loop
Melville, NY 11747
Tel: (718)966-2593
Website: http://www.CSFinfo.org

Christopher & Dana Reeve Foundation

636 Morris Turnpike, Suite 3A
Short Hills, NJ 7078
USA
Tel: (973)379-2690
Fax: (973)912-9433
Tel: (800)225-0292
Email: prc@ChristopherReeve.org
Website: http://www.christopherreeve.org

Easter Seals

230 W. Monroe St.
Suite 1800
Chicago, IL 60606-4802
Tel: (312)726-6200
Fax: (312)726-1494
Tel: (800)221-6827
Email: info@easterseals.com
Website: http://www.easterseals.com

Fetal Hope Foundation

9786 South Holland Street
Littleton, CO 80127
USA
Tel: (303)932-0553
Tel: (877)789-4673
Email: info@fetalhope.org
Website: http://www.fetalhope.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

International Federation for Spina Bifida and Hydrocephalus

Cellebroersstraat 16
Brussels, B1000
Belgium
Tel: 32025020413
Fax: 32025021129
Email: info@ifglobal.org
Website: http://www.ifglobal.org

March of Dimes

1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Email: AskUs@marchofdimes.org or preguntas@nacersano.org
Website: http://www.marchofdimes.org and nacersano.org

Medical Home Portal

Dept. of Pediatrics
University of Utah
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: mindy.tueller@utah.edu
Website: http://www.medicalhomeportal.org

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Website: http://www.ninds.nih.gov/

New Horizons Un-Limited, Inc.

811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Website: http://www.new-horizons.org

Pathways Awareness Foundation

2591 Compass Rd
Suite 100
Glenview, IL 60026
USA
Tel: (847)510-5633
Tel: (800)955-2445
Email: friends@pathwaysawareness.org
Website: http://www.pathwaysawareness.org

Shine

42 Park Road
Peterborough, PE1 2UQ
United Kingdom
Tel: 1733555988
Fax: 8454507755
Email: info@shinecharity.org.uk
Website: http://www.shinecharity.org.uk/

Spina Bifida & Hydrocephalus Association of Ontario

P.O. Box 103, Suite 1006
555 Richmond Street West
Toronto, Ontario, M5V 3B1
Canada
Tel: 4162141056
Fax: 4162141446
Tel: 8003871575
Email: provinivial@sbhao.on.ca
Website: http://www.sbhao.on.ca

Spina Bifida Association of America

4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: sbaa@sbaa.org
Website: http://www.sbaa.org

Spina Bifida Hydrocephalus Queensland

PO Box 8022
Woolloongabba
Queensland, 4102
Australia
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Email: info@sbhqueensland.org.au
Website: http://www.spinabifida.org

Spina Bifida and Hydrocephalus Canada

Suite 647-167 av. Lombard Avenue
Winnipeg
R3B 0V3
Canada
Tel: 2049253650
Fax: 2049253654
Tel: 8005659488
Email: info@sbhac.ca
Website: http://www.sbhac.ca

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  9/23/2007
Copyright  2007 National Organization for Rare Disorders, Inc.

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Spina Bifida