Congenital Heart Disease (Adult)

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U-M Frankel Cardiovascular Center Adult Congenital Heart team of 6 health professionals
U-M Frankel Cardiovascular Center Adult Congenital Heart Team

Treating Congenital Heart Conditions in Adult Patients

Congenital heart disease means there is a problem with the structure of your heart that has been present since birth. Congenital heart disease is usually diagnosed in infancy or childhood, and people who have been diagnosed early have been dealing with it their entire lives, requiring continued care and potentially additional surgeries. Others do not find out about their disease until adulthood and are trying to understand what it means for them. The University of Michigan Adult Congenital Heart Program has the expertise to care for both types of patients, and our program also works closely with the Michigan Congenital Heart Center

Congenital heart disease affects at least one in 100 live births. It ranges widely in severity, from tiny holes between heart chambers that close naturally, to life-threatening abnormal structures, such as hypoplastic left-heart syndrome, which require a series of complicated surgeries. As an adult with congenital heart disease, you may need the care of our program for a number of reasons; for example, you may:

  • Be at risk for developing an arrhythmia (irregular heartbeat)
  • Have had surgery as a child and will require further surgery as an adult
  • Have had a graft implanted as a child that is now too small for your adult body
  • Have had a valve replaced as a child that has worn over time
  • Be pregnant, or wish to become pregnant, and you and your baby need to be regularly monitored

About the University of Michigan Adult Congenital Heart Program

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The U-M Frankel CVC Adult Congenital Heart Disease Program is a full-service program with extensive experience in congenital heart imaging, electrophysiology, minimally invasive catheterization and cardiothoracic congenital surgery. The program was accredited in 2017 by the Adult Congenital Heart Association as a Comprehensive Care Center. The ACHA is dedicated to improving the quality of life and extending the lives of adults with congenital heart disease. The accreditation recognizes the Frankel CVC as a foremost leader in the field and a provider of the highest quality of care for ACHD patients.

The American College of Cardiology and American Heart Association recommend that surgeons with congenital expertise perform specific surgeries to optimize adult congenital patient outcomes, and to reduce risk and complications. General cardiothoracic surgeons generally do not see many of the heart anatomies and prior surgical repairs found in adult congenital patients, which is why our team includes experienced cardiothoracic congenital surgeons who specialize in these conditions. Together with our congenital heart cardiologists, they provide additional consultation regarding surgical options when needed and their respective risks and benefits.

Colloboration with Other Specialties

We collaborate with other specialties to ensure your care is comprehensive, including:

For patients who have had a long-time relationship with their pediatric cardiologist at C.S. Mott Children’s Hospital, which is affiliated with the University of Michigan, it is possible to continue your care with your physician. However, some patients no longer want to receive care at a children’s hospital and are ready to forge a new relationship with one of our experienced cardiologists at the Adult Congenital Program. The choice is yours to make, and either way, you will receive expert congenital heart care from a skilled team of physicians and nurses.

Patient Resources

Make an Appointment

To make an appointment to discuss your congenital heart problems, call us toll-free at 877-720-3983 or email us at CVCCallCtr@med.umich.edu.

For Pediatric Patients

Visit the University of Michigan Pediatric Heart Program at C.S. Mott Children's Hospital online.